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Over 50% of people with Down syndrome are born with a congenital heart defect. Grace is one of those heart warriors. There is nothing quite like your baby being born and the doctors telling you they most likely won’t live past 2-3 without open heart surgery. Grace’s defect (complete Atrioventricular Canal Septal defect ) was repaired when she was 5 months old. It’s the worst thing I ever went through as a parent. She still has a moderate leakage of her mitral valve we keep a very close eye on. G

Over 50% of people with Down syndrome are born with a congeni…

7.2K views11 months ago

FacebookCandidly Kind

Atrioventricular Septal Defect (AVSD) - Children's Heart Federation

Atrioventricular Septal Defect (AVSD) - Children's Heart Federati…

2K viewsNov 13, 2019

Gene behind Down syndrome heart defects identified

Gene behind Down syndrome heart defects identified

Born With Down Syndrome and an Atrial Septal Defect, Locklyn’s Determination Shines Through

Born With Down Syndrome and an Atrial Septal Defect, Locklyn’s Det…

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Weston's Down syndrome Heart Story

Weston's Down syndrome Heart Story

3.3K viewsMar 21, 2022

FacebookCleveland Clinic Children's

few days after we were told about Aria’s Down syndrome diagnosis, we were told about her congenital heart defect, she had an AVSD, two very large holes in her heart that would require open-heart surgery to fix. | Kirstin Czernek

few days after we were told about Aria’s Down syndrome diagnosis, …

56 views10 months ago

FacebookKirstin Czernek

Inherited heart conditions

Inherited heart conditions

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Down's syndrome: What is the genetic condition?

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Atrioventricular Septal Defect (AVSD)

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Understanding Atrioventricular (A…

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Congenital Heart Defects (CHDs)

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Ventricular Septal Defect, Animation

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Atrial Septal Defect Repair at SSM Heart Institute

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Heart Conditions – Ventricular Septal Defect (VSD)

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Hypoplastic Left Heart Syndrome …

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Heart Conditions – Atrial Septal Defect (ASD)

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OUR BABY NEEDS HEART SURGERY??! (LTGA - Congenital …

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Atrial Septal Defects – Embryology | Lecturio

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Ventricular septal defect (VSD): fetal echocardiography

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How Heart Failure is Diagnosed

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Atrial Septal Defect - Heart Auscultation - Episode 7

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Case Study: Congenital Heart Defects by P. Lincoln | OPENPedi…

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