Anyone have comments on We Have Parkinsons.com
Dec 17, 2020 · I’m back on the Restore Gold a month now w/no interruptions and starting to sense it’s working. The last 2-3 days I’ve been able to go without that 3rd dose of Parkinson’s meds (carbi/leva) successfully and the disturbing distonia is slowly receding. I went ahead and got more RG. I would recommend trying it.
Restore Gold Supplement for Parkinson's: Expert Q&A - JustAnswer
Neurologist: Dr. Mark. Hello -. There really is no good scientific data to say that this works. Because it is a "supplement", and sold as a supplement -- it is not subject to the FDA to prove that there is efficacy with medical studies. That being said, it could be mildly helpful, although as you probably know, it is expensive, and overall ...
My Parkinson's Struggles Are Worsening Despite My Best Efforts
Jun 5, 2018 · My initial approach was to go to physical and occupational therapy and to continue my exercise regimen (weights, yoga, cycling, walking). This plan did not seem to slow disease progression or alleviate my symptoms. My depression and lack of motivation (other Parkinson’s disease symptoms) were also hindering me.
Red flags and health scams - Parkinson's News Today
Jul 9, 2020 · Red flags and health scams. Posted by Ally on July 9, 2020 at 4:17 pm. There is a lot of bad and misleading information on the Internet about a lot of topics, and Parkinson’s alternative treatments is one of them. How do you evaluate if something you read online is trustworthy?
Inbrain earns FDA breakthrough device status for Parkinson's
Sep 22, 2023 · The U.S. Food and Drug Administration (FDA) has granted breakthrough device designation to Inbrain Neuroelectronics ’ neural platform for its potential to provide more effective deep brain stimulation (DBS) as an add-on Parkinson’s treatment. The platform — called Intelligent Network Modulation System — combines skin-like graphene ...
CAP-003 may restore GCase activity above effective levels
Oct 9, 2024 · GCase activity was increased by about 250%. Since just a 30% increase is needed to normalize GCase activity in patients, these data suggest CAP-003 could offer benefits in Parkinson’s linked to mutations in the GBA gene. CAP-003 didn’t reach other parts of the body as much as AAV9. The delivered gene’s activity was reduced by 19 times in ...
Phase 2 trial supports larger study of CNM-Au8 for Parkinson's
Feb 19, 2024 · Two proof-of-concept trials — REPAIR-PD (NCT03815916) and REPAIR-MS (NCT03993171) — were launched in 2019 to evaluate the effects of CNM-Au8 on brain in 13 adults with idiopathic (of unknown cause) Parkinson’s and 11 with relapsing-remitting MS. Parkinson’s participants, with a mean age of 65.9, had been living with the disease for a ...
Study finds large-scale disruptions in Parkinson’s gut microbiome
Aug 30, 2024 · In the new study, a team of scientists in Canada aimed to examine functional changes in the Parkinson’s microbiome and the relationship between those changes, bacterial metabolites, and disease progression. The study involved 197 people with Parkinson’s and 103 individuals without the disease, who served as a control group.
Phase 2 Trial of Therapy VY-AADC to Include More Parkinson’s …
Jan 9, 2019 · The ongoing Phase 2 study of the gene therapy VY-AADC will enroll more Parkinson’s disease patients than originally planned, Voyager Therapeutics announced. The company’s revised trial protocol will include more patients — up from 75 to 100 — in the RESTORE-1 Phase 2 clinical trial (NCT03562494). Voyager also is planning to conduct a ...
What Not to Say to Someone with Parkinson’s Disease
Aug 6, 2019 · 2. ‘You are lucky you don’t have tremors.’. Or, ‘Your symptoms could be worse.’. Parkinson’s is progressive and unpredictable. It’s impossible to know where my symptoms might be six months from now, let alone six years from now. Just because I don’t exhibit a particular symptom now does not mean I will never have it.